Bloggers Unite: People First: Empowering People With Disabilities
A few words before I begin. While I’ve worked for more than 20 years with adults who have disabilities I’m far from an expert, particularly since I have no first hand knowledge of what it’s like to live with a disability. I’ve learned much, but I still have a great deal more to discover. I’m going to share some of what I’ve picked up over the years, but if I offend anybody who has a disability I’m deeply sorry. Please feel free to give me feedback so I can avoid repeating my mistake.
Disability is far more prevalent than many realize. Some facts:
~In just the past hour, almost 3,000 Americans became disabled. That’s 49 every minute.
~Over 51 million Americans - 18% of the population - are classified as disabled.
~Almost one-third of Americans entering the work force today (3 in 10) will become disabled before they retire
What exactly is a disability? There are various federal and state definitions. (It’s a good idea to look at these definitions as guidelines that indicate what supports a person might need and/or what benefits they might qualify for rather than as descriptors of the person.) Disabilities can be physical or mental, mild or severe, temporary or permanent. Sometimes it’s obvious that a person has a disability (for example, if they use a wheelchair for mobility). Other times it isn’t (mild Cerebral Palsy or a chronic pain condition).
Disability can affect anybody at any time. Some people are born with a disability, some are affected in childhood, others in adulthood. It’s critical we never think of disability as something that can’t happen to us and is only an issue for others. Chances are we all have a friend or family member affected by disability; likely more than one (I myself have several). We ourselves may face disability at some point in life.
Historically people with disabilities were isolated from society, locked away in prisons, asylums and other institutions. This was done out of fear and ignorance. Even today people with disabilities struggle to gain access to the community, suffer much higher rates of unemployment than other people and face significant stigma.
So what can you do to help empower people with disabilities? Here are a few tips:
See the person, not the disability label. When we’re talking to our friend who has cancer we see our friend. Our mom may wear glasses but we never think of her as “a glasses wearer”, we think of her as our mom. So why is it that it’s typical to see the disability, rather than the person, when we encounter a person who has a disability? We see the wheelchair, not the person in it. We see the cognitive impairment rather than Julie, the woman with the wicked sense of humor and love of cats.
Look at the person. See them for who they are and not for their disability label. You’ll probably be surprised at how much you both gain from the experience.
Use “People First” language. This goes along with the first point. Rather than “disabled person”, which emphasizes the disability label, it’s preferable to use “person with a disability”. Remember, the disability is just an aspect of the person’s life, not the person herself. This may seem like more “PC” semantics, but would you prefer to be called “A schizophrenic” or “a person with schizophrenia”. The latter is much less dehumanizing in my opinion.
Presume Competency. One of the common mistakes people make, particularly with individuals who have obvious disabilities and/or cognitive disabilities, is to assume incompetency. They then do everything for the person (or try to), and sometimes even make the person “prove” their competence before allowing them things we take for granted. Worse yet, they sometimes neglect to teach even the most basic skills under the assumption that the person “can’t” learn. Assumption of incompetency is a particular problem when it comes to employment, as many employers automatically assume a disability label means the person cannot do the job.
Always presume competence when you encounter a person with disabilities. If they ask you for assistance be available to give it, but never assume they need it. It is especially important to not invade someone’s personal space uninvited, even if your intent is to help. For example, never grab hold of a person’s wheelchair without permission, as the wheelchair is an extension of their body.
Be Inclusive. One of the best ways you can empower people with disabilities is to be inclusive. If you have a business make sure it’s compliant with ADA standards. Recruit employees and/or volunteers who have disabilities. Employ People First language and encourage others to do the same. Speak out against stigma whenever and wherever you encounter it. Volunteer with people who have disabilities. Recruit people who have disabilities into your community groups, sports teams, etc. The possibilities are endless, and everybody wins.
Helpful links:
Disability is Natural
National Alliance on Mental Illness
ADA.gov
Autism Speaks
ADAPT
American Association of People With Disabilities
Through the Looking Glass